Study reveals lack of uptake in Trusts among UK parents with disabled children

Study reveals lack of uptake in Trusts among UK parents with disabled children

A national new study by Gardner Leader solicitors has found a heightened lack of parental awareness around the financial benefits of placing inheritance in a Trust, with at least two thirds of disabled children at risk of losing future state benefits and inheritance.

The research, which looked into the wills of 1000 UK parents of disabled children discovered that 66% have no Trust or Trustee in place, leaving their child’s future inheritance unprotected, vulnerable to loss, and at risk of negatively affecting their child’s future disability benefits.

According to the study, nearly half (47%) of parents with no Trust are instead leaving their disabled child’s inheritance to a family member or friend, in the hope that person will care for their child and protect their share of the inheritance following the parent’s death.

A fifth have appointed a family member, 15% another non-disabled child and 13% a friend to look after and manage their disabled child’s share of inheritance.

But with no official provision in the will, like a Trust, protecting their disabled child’s share of the money this can be a risky decision, as Penny Wright, partner at Gardner Leader explains:

“It’s totally understandable for parents in this position to leave their estate to a trusted friend or family member to look after for their disabled child, but as many solicitors are aware, problems arise when this isn’t done properly. For example, if the entrusted person were to divorce and the child’s assets became part of the financial divorce settlement, or if the entrusted person were to die or become incapacitated. This is something we see often.”

Gardner Leader’s study did find that at least a third of disabled children will inherit direct rather than the money managed by a family or friend.

Penny Wright continues:

 “Like any beneficiary, this still leaves the inheritance vulnerable to the influence of a fraudster, which is sadly more common than people expect. And the value of the assets inherited may affect entitlement to means-tested state benefits.”

Loss of state disability benefits

From the 1000 parents with disabled children polled, nearly a third (29%) of children receive up to £6,000 a year in means tested state disability benefits, and over a quarter (27%) claim between £6,000 and £15,000 a year. Surprisingly, 40% of parents with disabled children have yet to apply for or don’t believe their child is entitled to disability benefits.

Penny explains further:

“Means tested benefits are affected by the amount of money and investments a person has, including inheritance. Under the Inheritance (Provision for Family and Dependants) Act 1975, it’s possible for the local authority to bring a claim on behalf of the child, which may result in an award being made which affects the child’s entitlement to means-tested benefits.

“But when a Trust is set up correctly, the inheritance is not a fund to which the disabled person is directly entitled so, it’s not taken into account when means tested, and therefore does not affect their entitlements.”

The wrong Trust

A third of parents polled by Gardner Leader used a DIY or ‘off-the self’ will, created without the aid of a solicitor. A further third, who have set up their disabled child’s inheritance in a Trust, are unaware of the type of Trust they have.

Penny adds:

“It’s encouraging to see from our report that over half of parents with disabled children sought the advice of a solicitor to create their will, but worryingly, almost half have not. Our report found that 36% of parents have types of trusts – life interest, bare trust and disabled person’s trusts – that can still fall foul of the rules relating to means tested benefits.”

Want to have your say? Leave a comment

Your email address will not be published. Required fields are marked *

Read more stories

Join over 6,000 wills and probate practitioners – Check back daily for all the latest news, views, insights and best practice and sign up to our e-newsletter to receive our weekly round up every Friday morning. 

You’ll receive the latest updates, analysis, and best practice straight to your inbox.

Features

Privacy Overview

This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.